CEP patients, families and caregivers shared an incredible weekend in Cleveland, OH 💜
From a discussion with porphyria experts and a virtual call with CEP patients around the world, to the many opportunities to connect individually and as a community, this weekend was a powerful reminder of the impact of coming together.
Participants openly discussed their challenges and priorities, giving UPA invaluable insight into the resources, advocacy, and support the community needs most, and shaping a roadmap for how we can better support the CEP community,
