experts in action

Porphyria Experts in Action

The United Porphyrias Association is proud to work closely with the porphyria experts on the UPA's Scientific Advisory Board and at the Porphyrias Consortium.

We're pleased to introduce our Experts in Action where we'll feature:

Summing UP: Easy-to-understand summaries of recent and important scientific research
What's UP Doc? Where the experts answer your questions
Meet your experts and advocates: Where we get to know the people who are changing the world for porphyria
Special events and recordings
New research opportunities
And more....

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What's UP Doc? Menopause and porphyria
June 20, 2024: By Dr. Karl Anderson; Question: How will menopause affect my porphyria? Are estrogen treatments for menopause safe?

What's UP Doc? Live- Cutaneous Porphyrias Bonus Questions
March 27, 2024: Dr. Bruce Wang answers the questions about acute hepatic porphyrias that we didn't get to in the Facebook Live Q&A on February 24, 2024.

What's UP Doc? PCT and menopause
June 24, 2022: By Dr. Herbert Bonkovsky; Question: Can starting menopause make PCT worse/relapse? (because phlebotomies are a treatment and if you stop having periods maybe iron builds up?)

What's UP Doc? Porphyrias Consortium
April 22, 2022: By Dr. Hetanshi Naik; What is the Porphyrias Consortium? Why is it so important? What do they do?

What's UP Doc? Enzymes and porphyria
April 15, 2022: What are enzymes and why they are important in the porphyrias?