Contact UPA at 800-868-1292 or info@porphyria.org
YOU are always needed at UPA. Please call to learn about ways to support this community! 800-868-1292 or contact info@porphyria.org.
We’re looking for 25 adult volunteers (ages 18+) with EPP, XLP, CEP or other photosensitive conditions to help make our Sun Escape Weekend in North Carolina special for kids and their families.
As a volunteer, you’ll have a chance to help kids and families with your condition, connect with your fellow volunteers and maybe try the camp zipline!
More information on the camp available here.
