Connect UP

You are not alone

Connect Up are small group meetings for patients and caregivers to connect and socialize with others in a safe and inclusive environment. Connect UP groups are peer-led and offered regularly over Zoom. 

Sign up to be matched to a group of your peers. Groups are set up based on types of porphyria and other experiences (ex. LGBTQ+).

Sign Up for Connect UP

Please provide the following information to help us match you with a Connect UP group that fits you.