Participate in Research
The UPA supports research which is focused on improving diagnosis, developing therapies, understanding of the disease burden, and advocates for increased research funding that can benefit patients — with an ultimate goal of helping researchers find a cure for all porphyrias.
Currently Recruiting- Clinical Trials
Clinical trials are studies testing new or experimental potential treatments for the porphyrias. These studies are important because they playing a key role in the development and FDA (Food and Drug Administration) approval of new therapies. Other studies may be available at clinicaltrials.gov.
Currently Recruiting- Observational Studies
Observational studies look to understand more about the complications and issues people with the porphyrias experience. These studies are important because they contribute to the overall knowledge and progress of the understanding of the porphyrias.
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