UPA Board of Directors

Our Directors are committed and enthusiastic volunteers who provide governance, oversight and directions to the UPA. Their personal and professional lives have been impacted by porphyria and rare disease advocacy, and they bring a diverse range of experiences and expertise to our organization.

  • Andrew L. Turrell, Chair

    New York, NY

  • Hon. Joseph Crowley

    Washington, DC

  • Robert J. Desnick, PhD, MD

    Palm Beach, FL

  • Ariel Lager, JD

    Philadelphia, PA

  • Hetanshi Naik, PhD, MS, CGC

    Palo Alto, CA

  • Shawn Willis

    Burlington, NC