GLOBAL
PORPHYRIA
DAY
On May 18 join the global porphyria community to raise awareness and understanding of porphyria!
As a rare disease, porphyria is often unheard of, unseen and misunderstood.
Global Porphyria Day is an annual day of awareness, where we come together as an international community to share our stories and advocate for greater understanding, timely diagnosis and a world free from the pain and challenges of porphyria.
Three ways you can raise awareness
for Global Porphyria Day
Join the #RealPeopleRealPain Challenge
Recording and posting your challenge video
Sharing porphyria descriptions and graphics that resonate with you
Challenging your porphyria friends to do the same
This year UPA is focusing on the painful realities of porphyria. Help others understand the pain by participating in the #RealPeopleRealPain Challenge.
You can participate by:
Turn #Purple for Porphyria
Order and wear your free purple awareness ribbon.
Wear purple and encourage your friends to wear purple too!
Light or decorate your home in purple
Share your purple on social media with the hashtag #PurpleforPorphyria
On May 18th, join UPA and our porphyria friends from around the world to raise porphyria awareness by turning the world #PurpleforPorphyria!
Help spread the word about porphyria
Like, comment on and share Global Porphyria Day posts that speak to you!
Be sure to follow United Porphyrias to get all the latest!
