What's UP Doc? Making a health care team

What's UP Doc? Is a monthly column where we feature a patient question along with a response from a member of the UPA Scientific Advisory Board.

Do you have a question you would like to ask a Porphyria Expert?  Send us an email at info@porphyria.org. We’d love to hear from you!

Porphyria is a complex condition and it's hard for patients to put together a "team" of doctors to collaborate on our care, especially when we may not know the systems of our body to regularly monitor and evaluate. Can you recommend a list of specialties for acute porphyria patients, and a list of specialties for cutaneous porphyria patients?

This week Dr. Bruce Wang helps patients as they try to assemble their “team” of doctors. To see Dr. Wang's suggested “team” of doctors for each porphyria click here.