Patient Day Feature: EPP & XLP Guidelines with Dr. Amy Dickey

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Written By United Porphyrias


The diagnosis and treatment of rare conditions like EPP and XLP can be confusing for doctors and patients alike.  Join Dr. Amy Dickey as she walks us through the recommendations from the new consensus guidelines for diagnosing and managing protoporphyrias.

 This presentation was originally delivered at Porphyria Patient Day on October 29, 2023 in Bethesda, MD.

 

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