Contact UPA at 800-868-1292 or info@porphyria.org
Applications are now open for a transformative weekend that promises to build off last year’s success by going bigger, better and with an extra day. We are looking for 32 photosensitive families from across North America (and 40 volunteers) to join us in celebrating all things Fun and all things No Sun.
SUN ESCAPE is open to kids from North America ages 6-17 with a photosensitive condition and their families. The weekend is completely free to participating families, including travel costs.
Visit our joint website to apply today www.sunescape.org. Deadline to apply is December 1, 2024.
We had so much fun at our very first porphyria patient and family weekend in September 2024 and we can't wait to do it again!
Be sure to join our mailing list to get the latest updates on upcoming events.
You are not alone!
Connecting with others who understand what you're going through is a great way to build a support system and community. UPA is pleased to launch Connect Up small group meetings for patients and caregivers to connect and socialize with others in a safe and inclusive environment. Connect UP groups will be peer-led and offered regularly over Zoom. SIGN UP HERE.
