Meetings & Events
Reproductive Health and Acute Hepatic Porphyrias
Join Dr. Rebecca Karp Leaf, a leading porphyria specialist at the Porphyria Center at Massachusetts General Hospital (MGH), for an informative webinar on reproductive health and porphyria!
What’s UP Doc? Live with Dr. Bruce Wang
Recording available! Dr. Bruce Wang took your questions live on Facebook.
PorphyriaPalooza
Our porphyria community came together for an incredible weekend of connection, celebration and learning!
Nutrition and Lifestyle in Porphyria- Recording Available
Recording available! Nutritionist and AIP patient Isabel Palazon joined us to discuss lifestyle and nutrition strategies to help manage your porphyria!
Bitopertin Trial UPdate
Join Dr. Amy Dickey to learn more about the the analysis of phase 2 clinical trials testing the safety and effectiveness of bitopertin to treat EPP.
"I'm Not Always Me": A Conversation
Join us for a special discussion based on based on Kalyn Shelton's memoir, I'm Not Always Me: Living with Porphyria.
What’s UP Doc? Live with Dr. Amy Dickey
Recording available! Dr. Amy Dickey took your questions live on Facebook.
What’s UP Doc? Live with Dr. Bruce Wang
Recording available! Dr. Bruce Wang took your questions live on Facebook.
Patient Day at Internation Porphyrias Symposium 2023
Recordings available! Leading porphyria experts shared the latest porphyria care recommendations and research.