Join Dr. Amy Dickey and fellow porphyria patient Ginger Gonsalves for a deep dive into living a full life while protecting yourself from the sun! Webinar will include:
Understanding what types of light can trigger a porphyria reaction
Protective options: sun clothing, window tinting, sunscreens
Special circumstances: visiting the dentist, getting surgery, going on vacation
Tips and tricks
Date: Saturday, April 12, 2025 Time: 1:00-2:00 pm ET (find your local time) Location: Zoom- register below for link
Information discussed will be applicable to all types of light-sensitive porphyrias: CEP, EPP, HEP, HCP, PCT, VP and XLP.
