Thank you to Dr. Amy Dickey and fellow porphyria patient Ginger Gonsalves for a deep dive into living a full life while protecting yourself from the sun! Webinar included:

• Understanding what types of light can trigger a porphyria reaction

• Protective options: sun clothing, window tinting, sunscreens

• Tips and tricks 

Information discussed will be applicable to all types of light-sensitive porphyrias: CEP, EPP, HEP, HCP, PCT, VP and XLP.