For Healthcare Professionals
The UPA works closely with the American Porphyria Expert Collaborative (APEX) and the members of the UPA Scientific Advisory Board to provide up-to-date medical information for patients and their healthcare providers.
While we cannot provide medical advice or interpret lab results, we will be glad to seek assistance from a porphyria expert and arrange a peer-to-peer consult.
Education and Research Opportunities
International Porphyrias Symposium, October 9-12, 2025
Join us October 9-12, 2025 in Washington, DC for the biennial International Porphyrias Symposium. Bringing together US and international porphyria experts to explore the latest advances in porphyria research, the program will explore the clinical manifestations of each porphyria, and the latest advances in their diagnosis, management and treatment, including newly approved and emerging therapies.