Connect with Others

You are not alone!

Connecting with others who understand what you're going through is a great way to build a support system and community.

Connect Up are small group meetings for patients and caregivers to connect and socialize with others in a safe and inclusive environment. Connect UP groups are peer-led and offered regularly over Zoom. 

Groups are available for AIP, VP, HCP, EPP/XLP, PCT and CEP, for caregivers and for the LGBTQIA+ porphyria community. New groups are formed based on interests and experiences.

Want to connect? Please fill out the form to be matched with a group!