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United Porphyrias Association
United Porphyrias Association
About Porphyria
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Cutaneous Porphyrias
Erythropoietic Protoporphyria (EPP) and X-Linked Porphyria (XLP)
Congenital Erythropoietic Porphyria (CEP)
Hepatoerythropoietic Porphyria (HEP)
Porphyria Cutanea Tarda (PCT)
Acute Porphyrias
ALAD-Deficiency Porphyria (ADP)
Acute Intermittent Porphyria (AIP)
Hereditary Coproporphyria (HCP)
Variegate Porphyria (VP)
United Porphyrias Association
United Porphyrias Association
About Porphyria
About Porphyria
Seeking a Diagnosis
Acute Porphyrias
Cutaneous Porphyrias
Our Stories
Glossary
Resources
Connect UP Meetings
UPA One to One
Porphyria Navigator
Drug Safety for AHP
Find a Specialist
Useful Links
Get Involved
Join Us
Participate in Research
Global Porphyria Day
Events
Volunteer
Donate
For Health Professionals
For Health Professionals
Disorders in Depth
Testing and Diagnosis
Drug Safety Database
About Us
About Us
Board of Directors
Scientific Advisory Board
UPA President's Council
Staff
Blog
Cutaneous Porphyrias
Erythropoietic Protoporphyria (EPP) and X-Linked Porphyria (XLP)
Congenital Erythropoietic Porphyria (CEP)
Hepatoerythropoietic Porphyria (HEP)
Porphyria Cutanea Tarda (PCT)
Acute Porphyrias
ALAD-Deficiency Porphyria (ADP)
Acute Intermittent Porphyria (AIP)
Hereditary Coproporphyria (HCP)
Variegate Porphyria (VP)
Folder: About Porphyria
Back
About Porphyria
Seeking a Diagnosis
Acute Porphyrias
Cutaneous Porphyrias
Our Stories
Glossary
Folder: Resources
Back
Connect UP Meetings
UPA One to One
Porphyria Navigator
Drug Safety for AHP
Find a Specialist
Useful Links
Folder: Get Involved
Back
Join Us
Participate in Research
Global Porphyria Day
Events
Volunteer
Donate
Folder: For Health Professionals
Back
For Health Professionals
Disorders in Depth
Testing and Diagnosis
Drug Safety Database
Folder: About Us
Back
About Us
Board of Directors
Scientific Advisory Board
UPA President's Council
Staff
Blog
Folder: Cutaneous Porphyrias
Back
Erythropoietic Protoporphyria (EPP) and X-Linked Porphyria (XLP)
Congenital Erythropoietic Porphyria (CEP)
Hepatoerythropoietic Porphyria (HEP)
Porphyria Cutanea Tarda (PCT)
Folder: Acute Porphyrias
Back
ALAD-Deficiency Porphyria (ADP)
Acute Intermittent Porphyria (AIP)
Hereditary Coproporphyria (HCP)
Variegate Porphyria (VP)
Mental Health Focus Group- Cutaneous Porphryias
Filled United Porphyrias 2024-12-09 Filled United Porphyrias 2024-12-09

Mental Health Focus Group- Cutaneous Porphryias

This focus group with focus on mental health and mental health resources for cutaneous porphyrias.

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Longitudinal Study of the Porphyrias
Recruiting-Observational United Porphyrias 2019-03-11 Recruiting-Observational United Porphyrias 2019-03-11

Longitudinal Study of the Porphyrias

Long-term study to learn more about the disease course and quality of life for all the porphyrias. Open to US residents with a confirmed diagnosis of porphyria.

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