Meetings & Events
Nutrition and Lifestyle in Porphyria- Recording Available
Recording available! Nutritionist and AIP patient Isabel Palazon joined us to discuss lifestyle and nutrition strategies to help manage your porphyria!
Past Events
Recording available! Dr. Bruce Wang took your questions live on Facebook.
Our porphyria community came together for an incredible weekend of connection, celebration and learning!
Recording available! Nutritionist and AIP patient Isabel Palazon joined us to discuss lifestyle and nutrition strategies to help manage your porphyria!
Join Dr. Amy Dickey to learn more about the the analysis of phase 2 clinical trials testing the safety and effectiveness of bitopertin to treat EPP.
Join us for a special discussion based on based on Kalyn Shelton's memoir, I'm Not Always Me: Living with Porphyria.
Recording available! Dr. Amy Dickey took your questions live on Facebook.
Recording available! Dr. Bruce Wang took your questions live on Facebook.
Recordings available! Leading porphyria experts shared the latest porphyria care recommendations and research.