Meetings & Events

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Past Events

Featured
What’s UP Doc? Live with Dr. Bruce Wang
Nov 2
What’s UP Doc? Live with Dr. Bruce Wang

Recording available! Dr. Bruce Wang took your questions live on Facebook.

PorphyriaPalooza
Sep 13
PorphyriaPalooza

Our porphyria community came together for an incredible weekend of connection, celebration and learning!

Nutrition and Lifestyle in Porphyria- Recording Available
Jul 20
Nutrition and Lifestyle in Porphyria- Recording Available

Recording available! Nutritionist and AIP patient Isabel Palazon joined us to discuss lifestyle and nutrition strategies to help manage your porphyria!

Bitopertin Trial UPdate
Jul 13
Bitopertin Trial UPdate

Join Dr. Amy Dickey to learn more about the the analysis of phase 2 clinical trials testing the safety and effectiveness of bitopertin to treat EPP.

"I'm Not Always Me": A Conversation
Jun 15
"I'm Not Always Me": A Conversation

Join us for a special discussion based on based on Kalyn Shelton's memoir, I'm Not Always Me: Living with Porphyria.

What’s UP Doc? Live with Dr. Amy Dickey
May 11
What’s UP Doc? Live with Dr. Amy Dickey

Recording available! Dr. Amy Dickey took your questions live on Facebook.

Sun Escape 2024
May 3
Sun Escape 2024

Join us for a weekend of ALL FUN and NO SUN with the whole family!

What’s UP Doc? Live with Dr. Bruce Wang
Feb 24
What’s UP Doc? Live with Dr. Bruce Wang

Recording available! Dr. Bruce Wang took your questions live on Facebook.

Patient Day at Internation Porphyrias Symposium 2023
Oct 29
Patient Day at Internation Porphyrias Symposium 2023

Recordings available! Leading porphyria experts shared the latest porphyria care recommendations and research.