Global Porphyria Day: Live April 19, 2023

Recordings
Written By United Porphyrias

UPA's Kristen Wheeden and Porphyria Expert Dr. Bruce Wang answered your questions about:

- New treatments

- Long-term health impacts of Porphyria

- Safe lights for EPP

- Preventing acute attacks

... and more!

The recording is available on the Porphyria Together Facebook Page.

 

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Dr. Wang, Live: February 18, 2023